My health ( Archived) (43)

Nov 4, 2009 4:33 PM CST My health
RayfromUSA
RayfromUSARayfromUSAvienne, Rhone-Alpes France86 Threads 29 Polls 6,611 Posts
As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.

I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.

Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.

Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.

If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.

So, please remember me in your prayers.
Especially that I will be able to get things accomplished.
There's a lot to do and everything is really hard for me.
------ This thread is Archived ------
Nov 4, 2009 4:36 PM CST My health
Thalassa
ThalassaThalassaRome, Lazio Italy104 Threads 2,410 Posts
Ahhhhh, Ray. I have no words. hug
------ This thread is Archived ------
Nov 4, 2009 4:43 PM CST My health
RayfromUSA: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.

I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.

Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.

Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.

If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.

So, please remember me in your prayers.
Especially that I will be able to get things accomplished.
There's a lot to do and everything is really hard for me.
Really sorry to hear that!hug
------ This thread is Archived ------
Nov 4, 2009 4:44 PM CST My health
bettyboop63
bettyboop63bettyboop63glasgow, Strathclyde, Scotland UK61 Threads 2,036 Posts
RayfromUSA: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.

I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.

Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.

Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.

If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.

So, please remember me in your prayers.
Especially that I will be able to get things accomplished.
There's a lot to do and everything is really hard for me.


you shall be in my thoughts and prayers every day and when I start my treatment soon we can keep each others spirits up..hug ..Ive cared for many adults in your situation throughout my career and as Im aslo coping with a debilitating illness every day I can totally empathise with your situation ..you lean on me as when you need....bouquet
------ This thread is Archived ------
Nov 4, 2009 4:49 PM CST My health
RDM59
RDM59RDM59Edinburgh, Lothian, Scotland UK92 Threads 5 Polls 14,070 Posts
I don't pray Ray but you have my sympathies for having such a horid condition.
I hope its progress is slow.
------ This thread is Archived ------
Nov 4, 2009 5:57 PM CST My health
HealthyLiving
HealthyLivingHealthyLivingSomewhere In, Tennessee USA527 Threads 2 Polls 4,775 Posts
RDM59: I don't pray Ray but you have my sympathies for having such a horid condition.
I hope its progress is slow.



Actually R, praying is quite simple...


please Almighty God, You know the situation of our friend Ray concerning the Health of his mind and body. You have given him the mind of Christ. A sound mind. I curse the roots of this disease!! I command this disease to cease and desist immediately! I ask you now to bring Rays body and mind in line with his Spirit and bring forth complete healing. The Anointing breaks the yolk! I ask you to touch Ray NOW with your presence. I ask in accordance with your word who spoke these words:

Mar 11:22 Jesus said to them, "Have faith in God!
Mar 11:23 I can guarantee this truth: This is what will be done for someone who doesn't doubt but believes what he says will happen: He can say to this mountain, 'Be uprooted and thrown into the sea,' and it will be done for him.
Mar 11:24 That's why I tell you to have faith that you have already received whatever you pray for, and it will be yours.
Mar 11:25 Whenever you pray, forgive anything you have against anyone. Then your Father in heaven will forgive your failures."

Almighty God, I believe I receive what I have asked for and I thank YOU and give YOU Glory for Ray's healing and a good report! Ray, receive your healing in Jesus name! Amen! And so be it.




teddybear
------ This thread is Archived ------
Nov 4, 2009 6:58 PM CST My health
hollandgirl
hollandgirlhollandgirlSomewhere in Canada. B.C., British Columbia Canada523 Threads 4,464 Posts
HealthyLiving: Actually R, praying is quite simple... Almighty God, You know the situation of our friend Ray concerning the Health of his mind and body. You have given him the mind of Christ. A sound mind. I curse the roots of this disease!! I command this disease to cease and desist immediately! I ask you now to bring Rays body and mind in line with his Spirit and bring forth complete healing. The Anointing breaks the yolk! I ask you to touch Ray NOW with your presence. I ask in accordance with your word who spoke these words:

Mar 11:22 Jesus said to them, "Have faith in God!
Mar 11:23 I can guarantee this truth: This is what will be done for someone who doesn't doubt but believes what he says will happen: He can say to this mountain, 'Be uprooted and thrown into the sea,' and it will be done for him.
Mar 11:24 That's why I tell you to have faith that you have already received whatever you pray for, and it will be yours.
Mar 11:25 Whenever you pray, forgive anything you have against anyone. Then your Father in heaven will forgive your failures."

Almighty God, I believe I receive what I have asked for and I thank YOU and give YOU Glory for Ray's healing and a good report! Ray, receive your healing in Jesus name! Amen! And so be it.


Joining you in this prayer for Ray.
Where there are two gathered in My Name, there I will be also, says Jesus.
Amen let it be so
------ This thread is Archived ------
Nov 4, 2009 9:46 PM CST My health
jokerlips
jokerlipsjokerlipsJakarta, Indonesia5 Threads 1 Polls 364 Posts
wishing you get the treatment needed to fight this battle, Ray. I don't know you personally but I know the fighting spirit is there :) So, you'll be in our prayers angel

"...for the battle is the Lord's"hug
------ This thread is Archived ------
Nov 4, 2009 11:30 PM CST My health
Laura25
Laura25Laura25Somewhere, New York USA50 Threads 6 Polls 8,178 Posts
So sorry to hear that your condition is getting worse, Ray. sad flower

I don't pray, but am keeping you in my thoughts and wish you be able to fight the acceleration process.

Big hugs.
------ This thread is Archived ------
Nov 5, 2009 3:36 PM CST My health
hopefloats
hopefloatshopefloatsSlim's Lady, Tennessee USA51 Threads 6,660 Posts
So sorry to hear this Ray.
teddybear teddybear teddybear teddybear teddybear
------ This thread is Archived ------
Nov 5, 2009 3:44 PM CST My health
RobertC2
RobertC2RobertC2Xaghra, Gozo, Gozo Malta91 Threads 8 Polls 8,344 Posts
RayfromUSA: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.

I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.

Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.

Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.

If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.

So, please remember me in your prayers.
Especially that I will be able to get things accomplished.
There's a lot to do and everything is really hard for me.


You're a cool guy and your posts are always decent and thoughtful and they don't matter if from a guy who is healthy or going downhill slowly or rapidly - we all die sooner or later and it's quality of thought that is more important than quantity of wasted time.

Your quality of thought is precious and it has already impinged on the consciousness of many people. You deserve to feel proud of yourself; should you die now (this instant) your life shall not have been in vain because you have had a BENEFICIAL influence on many other people - consciously or unconsciously.

YOU have affected ME in a beneficial way - I am glad to have 'met' you and feel honoured to have been part of your indirect world. I am a man of little or no faith but I thank 'whatever' for your existence.............. yes, you are in my prayers - of celebration of life rather than the sorrow of inevitable death that we all must face one day.

Cheers! thumbs up wine
------ This thread is Archived ------
Nov 5, 2009 3:48 PM CST My health
kyriacos2009
kyriacos2009kyriacos2009Hemel Hempstead, Hertfordshire, England UK1 Threads 37 Posts
Sending you prayers, good wishes, and positive thoughts.

hug
------ This thread is Archived ------
Nov 5, 2009 3:49 PM CST My health
goodfriend
goodfriendgoodfriendglasgow, Strathclyde, Scotland UK2 Threads 2,573 Posts
I am sad to hear of you're ill health, my heart goes out to you and i hope you will find the strength to do all that you need to get done..bouquet bouquet
------ This thread is Archived ------
Nov 5, 2009 3:53 PM CST My health
Englishman55
Englishman55Englishman55Salisbury, Wiltshire, England UK31 Threads 2 Polls 6,405 Posts
Hi Ray,
I have always read your posts with interest, not always agreeing but with respect for your point of view.
You are always concise and forthright and I would hope that we will see more of you for a long time to come.

I am sorry to hear that at some point we may not see you here, but wish that it's still a long way off.

I hope your preperations go well for you and you manage to achieve all that you want.

Best wishes with you fight Ray... Take care hug
------ This thread is Archived ------
Nov 5, 2009 3:57 PM CST My health
Shewolf55
Shewolf55Shewolf55Columbia, South Carolina USA3 Threads 392 Posts
You are a great member of CS and I hope that you can continue to post for a long time to come. Good luck with all the preparations and I hope that they do not add to your burdens.

I get the Tilt-o-Whirl bit and know you must be uncomfortable. You have a strong spirit and a good soul to be coping so well with this disease.

comfort hug sad flower
------ This thread is Archived ------
Nov 5, 2009 4:09 PM CST My health
rizlaredonline today!
rizlaredonline today!rizlaredNot in Cebu City, Central Visayas Philippines89 Threads 2 Polls 5,588 Posts
Ray, we may not agree on threads but you have my sympathy and thoughts, I wish you well in your fight against this problem, and trust that medication can in some small way easy your pain and discomfort. I know you believe in God so... God speed and blessings.handshake
------ This thread is Archived ------
Nov 5, 2009 8:49 PM CST My health
rockandrollrn
rockandrollrnrockandrollrnharwood hts, Illinois USA4 Threads 2 Polls 79 Posts
praying hard for you....

rockandrollrn
------ This thread is Archived ------
Nov 5, 2009 11:10 PM CST My health
Ambrose2007
Ambrose2007Ambrose2007BFE, South Dakota USA67 Threads 10 Polls 8,881 Posts
You've been a great contributor here, Ray. It's been a pleasure having your around.hug head banger
------ This thread is Archived ------
Nov 5, 2009 11:14 PM CST My health
blackorchids4u
blackorchids4ublackorchids4uwyandotte, Michigan USA4 Threads 310 Posts
I under stand god bless and hang in there
------ This thread is Archived ------
Nov 5, 2009 11:22 PM CST My health
mikey12654
mikey12654mikey12654Vancouver, Washington USA2 Threads 127 Posts
I don't post too much here but have read some of yours, I think you're a man with a great heart and soul. You're in my prayers my friend....handshake
------ This thread is Archived ------
Post Comment - Post a comment on this Forum Thread

This Thread is Archived

This Thread is archived, so you will no longer be able to post to it. Threads get archived automatically when they are older than 3 months.

« Go back to All Threads
Message #318

Stats for this Thread

1,554 Views
42 Comments
Created: Nov 2009
Last Viewed: Mar 25
Last Commented: Nov 2009

Share this Thread

We use cookies to ensure that you have the best experience possible on our website. Read Our Privacy Policy Here