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I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.
Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.
Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.
If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.
So, please remember me in your prayers.
Especially that I will be able to get things accomplished.
There's a lot to do and everything is really hard for me.