\Ffibromylagia (6)

Sep 14, 2008 10:02 AM CST \Ffibromylagia
Roseblossum
RoseblossumRoseblossumtown,, Ontario Canada44 Threads 293 Posts
Anyone battling this chronic illness.
Would like to hear from people.
Would like to hear your story, as a disability why it isn't recognized in society.professor
Sep 14, 2008 11:05 AM CST \Ffibromylagia
Roseblossum: Anyone battling this chronic illness.
Would like to hear from people.
Would like to hear your story, as a disability why it isn't recognized in society.

It's not considered a disability, because some doctors think it is all in the woman's head.
Sep 14, 2008 9:26 PM CST \Ffibromylagia
KHD100
KHD100KHD100Edmonton, Alberta Canada129 Threads 3 Polls 2,495 Posts
Roseblossum: Anyone battling this chronic illness.
Would like to hear from people.
Would like to hear your story, as a disability why it isn't recognized in society.


I work with a lady that has Fibromylagia. It's not an easy thing to deal with.
If your Dr feels it's all in your head, you have the wrong Dr.

teddybear
Sep 14, 2008 11:05 PM CST \Ffibromylagia
Loner1960
Loner1960Loner1960St. Alphonse, Manitoba Canada15 Threads 402 Posts
Thanks laffingone for explaining in detail, what this Fibromyalia is. I have never heard of this before.
Sep 14, 2008 11:51 PM CST \Ffibromylagia
laffingone
laffingonelaffingoneWilliams Lake, British Columbia Canada79 Threads 2 Polls 2,405 Posts
your welcome. I've heard of it before but didn't know exactly what it was. Google is great. lol
Sep 15, 2008 10:33 AM CST \Ffibromylagia
druidess6308
druidess6308druidess6308Aliquippa, Pennsylvania USA79 Threads 13,695 Posts
Roseblossum: Anyone battling this chronic illness.
Would like to hear from people.
Would like to hear your story, as a disability why it isn't recognized in society.


I live with this every day, and have to learn to live around it. Mine is more complicated because I also have Myofascial Pain Syndrome. When these two are combined, treatment is even harder. For example, acupuncture works well for Fibromyalsia, but can trigger MFPS. Massage therapy works well for MFPS, but can worsen Fibromyalsia. I work out with weights, even though one isn't supposed to with this disease. I just do it lightly with higher repetitions and progress slowly. I meditate and do Tai Chi, and that helps me to deal with the pain. I know my triggers, and stress is a big one, so I do my best to avoid them. When I do have a bad flare-up, I meditate more. It helps.

Alcohol and smoking are two other triggers for this. Most of us can look through the list of symptoms and see things we've had since childhood, and out of something like 19 or 20, I've had about 15-16 of them my entire life, or developed them with age, so I think that this is really a progressive disorder.

I'm lucky because despite its complications, mine is mild and manageable most of the time. (I also have the IBS that can accompany it.) I know that not all are so fortunate.
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by Roseblossum (44 Threads)
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