Any Other Ostomates or Partners of Ostomates Here? ( Archived) (19)

Apr 28, 2006 11:50 AM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
I have a total ileostomy, and am wondering if anyone else here is an ostomate (who's willing to admit it.) I'm wondering what your experience has been about dating as an ostomate, or dating someone with an ostomy.

I know there is no right or wrong about when to tell someone about it, but if you have any experience with this, I'd really appreciate some suggestions or feedback.
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Apr 28, 2006 6:38 PM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
bumping this back onto the boards... let's see if anyone will answer...?
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Apr 28, 2006 6:54 PM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
I was dying of malnutrition and dehydration, and was down to 95 lbs (I know, hard to imagine now!) because my colon was "shredded"... ulcerative colitis.
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Apr 28, 2006 6:56 PM CST Any Other Ostomates or Partners of Ostomates Here?
TabooN
TabooNTabooNClaremont, USA47 Threads 12,843 Posts
aw, hell.

Do you manage well, now?

his woman had a stomach bypass...then more, more...

very mentally ill, and searched for doctors to do it. Sells the morphine and pain killers on the street. Sick.
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Apr 28, 2006 7:00 PM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
I'm doing extremely well now. I was sick for 11 years before it got so bad I had to have the surgery, and I have a fantastic life now! I'm so grateful for the surgery, it GAVE me a life.

I would just like some feedback from anyone who has been through this themselves or have dated someone with an ostomy.
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Apr 28, 2006 7:00 PM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
not that I'm unhappy you've responded lol

thanks :-)
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Apr 28, 2006 7:07 PM CST Any Other Ostomates or Partners of Ostomates Here?
TabooN
TabooNTabooNClaremont, USA47 Threads 12,843 Posts
i know, hon =o)
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Apr 29, 2006 8:31 AM CST Any Other Ostomates or Partners of Ostomates Here?
fireliter
fireliterfireliterAllen Park, Michigan USA502 Threads 14 Polls 5,902 Posts
My only experience with this has been in a strictly clinical situations the post op care.
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Apr 29, 2006 8:57 AM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
Do you think this would bother you if your partner had an ostomy?
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Apr 29, 2006 9:43 AM CST Any Other Ostomates or Partners of Ostomates Here?
joovisst
joovisstjoovisstSodermanland, Sweden79 Threads 812 Posts
I don´t know what that is? Explain please.
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Apr 29, 2006 9:43 AM CST Any Other Ostomates or Partners of Ostomates Here?
cajunfroggy
cajunfroggycajunfroggyWaco, USA145 Threads 7,332 Posts
i wanted to ask too thanks
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Apr 29, 2006 9:52 AM CST Any Other Ostomates or Partners of Ostomates Here?
zonnetje
zonnetjezonnetjeLingolsheim, Grand Est France2 Threads 144 Posts
According to Google:

Ileostomy:
an operation in which the end of the small intestine, the ileum, is brought out through an opening in the abdomen. The contents of the intestine, unformed stool, are expelled through this opening into a bag called an appliance.
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Apr 29, 2006 10:10 AM CST Any Other Ostomates or Partners of Ostomates Here?
joovisst
joovisstjoovisstSodermanland, Sweden79 Threads 812 Posts
I always wanted to ask this question. If you have this surgery. Is the need for going to the bathroom in the morning gone?
I mean my bladder is not my best friend in the mornings. I wanna stay in bed but bladder says no, and bladder always win. No offens now Meilandra it´s a genuine but maybee dumb question.
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Apr 29, 2006 10:33 AM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
With ileostomates it's not "uniform" at all, it's all liquid, for the reason I said above. Only colostomates have any uniformity; the more colon left, the more uniformity.

And btw, you can't see any of this, the bags aren't see through or anything, it's close to my skin color and it has layers.

Rational or not, I actually feel less self-conscious about the bag than I do about my post-surgical weight gain, since I began fully absorbing nutrition for the first time in 11 years.
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Apr 29, 2006 11:02 AM CST Any Other Ostomates or Partners of Ostomates Here?
joovisst
joovisstjoovisstSodermanland, Sweden79 Threads 812 Posts
I have another question if you don´t mind?
The remaining part, the exodus so to speak, is it sewed up on it´s upper part? If not and you where to use the backdoor entrance, could it cause infection or pregnancy outside the whom? Or do they remove it copmletely and shut the door? No need to answer if this feels akward.
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Apr 29, 2006 11:28 AM CST Any Other Ostomates or Partners of Ostomates Here?
Leviathan
LeviathanLeviathanHamilton, Ontario, Ontario Canada8 Threads 675 Posts
I once had to pick a booger outta my nose...does that count?
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Apr 29, 2006 11:28 AM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
not "sewn up as well", because the sewn-up top part has been removed along with the rest of it, but you know what I mean.
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Apr 29, 2006 12:14 PM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
Colostomies can take a lot more care than ileos.
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Sep 13, 2006 8:25 AM CST Any Other Ostomates or Partners of Ostomates Here?
Meilandra
MeilandraMeilandraEden Prairie, Minnesota USA25 Threads 1,186 Posts
I don't know if there are any here these days, but I did want to post an update.

Yes, there is love after ostomies... I am engaged to a fantastic man who thinks my stoma is "cute", gets disppointed when he won't be around to see it when I change my bag, and thinks I'm drop dead gorgeous, even with my surgical scars. hug
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