Parenting and Autism (75)
norslyman: I think it's terrible that the parents of autistic kids recently lost their lawsuit against the vaccine makers. Too much money and power involved. I think there is hope in Alternative Medicine to reverse many symptoms, no need to think it will be a lifelong issue. It's all about detoxing. Mainstream Medicine just wants to give them drugs.
Not all docs want to medicate these kids. I am very lucky to have a neurologist that doesn't believe in putting these kids in "chemical handcuffs" as he put it. But after awhile the time did come when some medication was needed. Like when they stopped sleeping, except for 20 min. power naps, and I had been up for 72 straight hours. Someone was going to collapse and it wasn't them! So now they take something very mild to help them sleep and I don't wind up nuts and can still give them the care they need. It doesn't always take hold because it's so mild, but it does, most of the time, give us all the down time we need.
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bob1959: Can't sleep or what Von.........
Was off to bed hun then I saw this thread, is good not to feel alone sometimes.
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vonney: I can totally understand that. My daughter had a row with her sister over the weekend, dragged her around the garden by the hair, puched and kicked her, then stormed off to a friends. They friends Mam rang and said she could stay there the night. Was just such a relief not to have to deal with it for awhile.
Not selfish, just human.
Not selfish, just human.
Well, it's good to hear that others are dealing with similar issues, makes it a little more bareable.... if I could just get her to take some responsibility for her actions, she might have a chance to change and move forward... that seems to be our biggest obstacle.
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robinmarie43: Well, it's good to hear that others are dealing with similar issues, makes it a little more bareable.... if I could just get her to take some responsibility for her actions, she might have a chance to change and move forward... that seems to be our biggest obstacle.
Oh dont I know it. Nothing is ever her fault, just cant get through to her at all. Try putting consequense in place and it leads to another tantrum.
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vonney: I can totally understand that. My daughter had a row with her sister over the weekend, dragged her around the garden by the hair, puched and kicked her, then stormed off to a friends. They friends Mam rang and said she could stay there the night. Was just such a relief not to have to deal with it for awhile.
Not selfish, just human.
Not selfish, just human.
You're right! It's not selfish. It's called survival. Every once in a while, not often, but once in a while one of my older kids will take them for a night to give me a break. Believe me, I jump at the offer before they change their minds. My 11 year old can get very violent with me and the 10 year old. I don't think i've been bruise free in 9 years. Don't feel guilty! Embrace the break, no matter how it comes as long as you know they're safe.
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lifesajoy: Not all docs want to medicate these kids. I am very lucky to have a neurologist that doesn't believe in putting these kids in "chemical handcuffs" as he put it. But after awhile the time did come when some medication was needed. Like when they stopped sleeping, except for 20 min. power naps, and I had been up for 72 straight hours. Someone was going to collapse and it wasn't them! So now they take something very mild to help them sleep and I don't wind up nuts and can still give them the care they need. It doesn't always take hold because it's so mild, but it does, most of the time, give us all the down time we need.
Hi there
Fab thread
My lad was Diagnosed after 3 years of arguing with the Medical Services here. The response I received varied from Doctor to Doctor as my son went though turmoil until I found out what was happening to him. I had put his behaviour down to possibly being aware of the trauma at home at the time. I have even been told by a doctor he was behaving at the time because I was a single female raising a male child
When Dude and I got the verdict I was delighted because I knew then what track to take. As a result of the diagnosis 6 others in our extended family have been included in the batch
I for one, do not support the vaccine arguemenyt as my son has never been vacinated and neither have the others. I come from a background were we believe that nature takes care of chilhood ills very well without intervention..
I am not a parent who is into the drug route personally, as there are too many complications with the side effects. My friend that I spoke about earlier today did that, and now has a wee lad who cannot function without medication.
I found ove the years that behaviour manaegment worked best for me and thankfully it has paid off. He was diagnosed with Classic Autism and is attending a mainstream school achieving grades on par with his peers.
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lifesajoy: You're right! It's not selfish. It's called survival. Every once in a while, not often, but once in a while one of my older kids will take them for a night to give me a break. Believe me, I jump at the offer before they change their minds. My 11 year old can get very violent with me and the 10 year old. I don't think i've been bruise free in 9 years. Don't feel guilty! Embrace the break, no matter how it comes as long as you know they're safe.
That must be very difficult, it is good that you have help now and again.
I am able to work and do things but usually not without something happening which causes a hysterical phone call or something all the time...
I am grateful for the break and feel better that she has told me she is safe. I still don't know where she is or who she is with but she did call so I need to trust in that and give everyone their space.
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vonney: I can totally understand that. My daughter had a row with her sister over the weekend, dragged her around the garden by the hair, puched and kicked her, then stormed off to a friends. They friends Mam rang and said she could stay there the night. Was just such a relief not to have to deal with it for awhile.
Not selfish, just human.
Not selfish, just human.
Hi Vonney
Are there no support Services in your area to provide respite, I know that there is a group in County Clare who have fantastic services
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vonney: Oh dont I know it. Nothing is ever her fault, just cant get through to her at all. Try putting consequense in place and it leads to another tantrum.
That certainly sounds familiar... they definitly run the house.. whether they know it or not
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robinmarie43: Well, it's good to hear that others are dealing with similar issues, makes it a little more bareable.... if I could just get her to take some responsibility for her actions, she might have a chance to change and move forward... that seems to be our biggest obstacle.
Does she understand the concept of change
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TurkishDelight: Hi Vonney
Are there no support Services in your area to provide respite, I know that there is a group in County Clare who have fantastic services
Are there no support Services in your area to provide respite, I know that there is a group in County Clare who have fantastic services
There are hun but she refuses to go, and nearly gets herself into convulsions at the mention of it.
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Okay, here's another issue. Who's having trouble with school systems? My boys are being homeschooled this year because I had had it. 2 years ago the school board had me charged with "contributing to the delinquency of a minor" for following the boys doctor's order to keep them out of school on wednesdays to give them a break from the stress they had to deal with in school and alleviate some of their tantrums. It worked! And for 2 years they didn't attend school on wednesdays and it was written into their IEP's by the school on recommendation by their doctor. Out of the blue the director of special ed decided she didn't like it and had me arrested. Long story short, I fought it, the judge threw it out (and yelled at the administration for even bringing the case against me), I sued the school board for malicious prosecution and won and then pulled my boys out of school.
Anyone else having problems?
Anyone else having problems?
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Please look into how the mercury they're putting into your teeth is actually CAUSING autism (and don't listen to anything the authorities have to say). Good luck!
lifesajoy: Some how this landed in the Virginia Forums and I wanted it here. So lets try this again.
TD's post this morning gave me this idea.
Anyone out there raising autistic kids? It's not always easy to find others in the same situation to talk to, laugh with over some of the nutty things these kids do and say or cry with on those days when you are just overwhelmed because the kids are having a bad day. Those of us raising these kids don't exactly get out much if at all depending on the extent of their kids disability. I know I can't. I was very lucky to have found my guy and if it had not been for the wild hair that flew up my butt that got me to join this site, I'd still be alone.Anyone out there who wishes to share feelings, stories or needs an answer to a question that those of us who have been dealing with this for a while might have the answer to, feel free to post or message me if not comfortable posting such things on a forum.
We have been blessed and entrusted with the care of these special little ones, but we still need others in our situation that understand the challenges and stress we face on a daily basis to lean on now and then.
TD's post this morning gave me this idea.
Anyone out there raising autistic kids? It's not always easy to find others in the same situation to talk to, laugh with over some of the nutty things these kids do and say or cry with on those days when you are just overwhelmed because the kids are having a bad day. Those of us raising these kids don't exactly get out much if at all depending on the extent of their kids disability. I know I can't. I was very lucky to have found my guy and if it had not been for the wild hair that flew up my butt that got me to join this site, I'd still be alone.Anyone out there who wishes to share feelings, stories or needs an answer to a question that those of us who have been dealing with this for a while might have the answer to, feel free to post or message me if not comfortable posting such things on a forum.
We have been blessed and entrusted with the care of these special little ones, but we still need others in our situation that understand the challenges and stress we face on a daily basis to lean on now and then.
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Great thread lifesajoy and I hope it continues on. Sadly is 1am here and my bed calls.
To all the parents out there
To all the parents out there
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TurkishDelight: Does she understand the concept of change Maybe she doesnt as it may be too abstract for her. Have you tried given her an alternative to her behviour
I can honestly say that I have given her many alternatives. We have been to doctor after doctor, therapists, support groups, after school programs, in home aid to help her to find a job, succeed at home and school.... many many things....
I think in order for her to change, she needs to fully understand what she is doing wrong, then accept it and accept the help offered to her to succeed...
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lifesajoy: Yes there has been some links to vaccinations but that's not the only cause. There has also been studies that have proven a genitic link. Both my boys showed signs very early (before the suspected vaccines where administered). I've tried the gluten-free diet with no alleviation. It doesn't work in all cases and the expense is enormous. As for chelation therapy, I haven't been convinced yet that the risks out way the benefits. It's still a little too experimental for me to attempt on my boys. Maybe someday. But not yet.
I definitely wasn't saying that it was the cause in all cases, but did want to add the information in there for those who might not be aware of it.
I'm very aware of the cost of eating gluten-free. I developed a gluten intolerance after my gallbladder was removed...it was the final thing that tipped my digestive system over the edge and made me lactose and gluten intolerant.
$6.00 for a loaf of bread instead of $2.00 or less, and the comparative costs of pasta, etc...it sucks, but I suffer when I eat cheaper, but have gluten.------ This thread is Archived ------
lifesajoy: Okay, here's another issue. Who's having trouble with school systems? My boys are being homeschooled this year because I had had it. 2 years ago the school board had me charged with "contributing to the delinquency of a minor" for following the boys doctor's order to keep them out of school on wednesdays to give them a break from the stress they had to deal with in school and alleviate some of their tantrums. It worked! And for 2 years they didn't attend school on wednesdays and it was written into their IEP's by the school on recommendation by their doctor. Out of the blue the director of special ed decided she didn't like it and had me arrested. Long story short, I fought it, the judge threw it out (and yelled at the administration for even bringing the case against me), I sued the school board for malicious prosecution and won and then pulled my boys out of school.
Anyone else having problems?
Anyone else having problems?
The school has been very supportive of her and me. I think they put up with too much from her but they do try to help her succeed. No complaints here.. not that it was always that way but no complaints.
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I have been reading this thread with interest.
For the lady above, who is home schooling, I am deeply troubled that you went through what you did with your school board.
I am a teacher and I cannot even begin to think what the Director of special needs was thinking about, having you arrested?
That is just shocking, I am pleased that it was thrown out, as it should have been.
How is the home schooling going?
For the lady above, who is home schooling, I am deeply troubled that you went through what you did with your school board.
I am a teacher and I cannot even begin to think what the Director of special needs was thinking about, having you arrested?
That is just shocking, I am pleased that it was thrown out, as it should have been.
How is the home schooling going?
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Oh, by the way, both the boys were always on the honor role and never did a stitch of homework because of their need to seperate school from home. My 11 year old was in 5th grade working on a 7th grade level (thanks to his teacher going behind the school systems back to educate him on a level he needed to keep him from getting bored and disrupting the class) and my 10 year old was in 3rd grade working on a 5th grade level (his teacher did the same thing).
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Not selfish, just human.
Can't sleep or what Von.........