Parenting and Autism ( Archived) (75)

Feb 24, 2009 5:50 PM CST Parenting and Autism
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
Some how this landed in the Virginia Forums and I wanted it here. So lets try this again.

TD's post this morning gave me this idea.

Anyone out there raising autistic kids? It's not always easy to find others in the same situation to talk to, laugh with over some of the nutty things these kids do and say or cry with on those days when you are just overwhelmed because the kids are having a bad day. Those of us raising these kids don't exactly get out much if at all depending on the extent of their kids disability. I know I can't. I was very lucky to have found my guy and if it had not been for the wild hair that flew up my butt that got me to join this site, I'd still be alone.


Anyone out there who wishes to share feelings, stories or needs an answer to a question that those of us who have been dealing with this for a while might have the answer to, feel free to post or message me if not comfortable posting such things on a forum.

We have been blessed and entrusted with the care of these special little ones, but we still need others in our situation that understand the challenges and stress we face on a daily basis to lean on now and then.
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Feb 24, 2009 5:53 PM CST Parenting and Autism
SexyAttorney
SexyAttorneySexyAttorneyClearwater, Florida USA25 Threads 976 Posts
I do not have a handicapped child, but admire those parents who do have the patience and make the sacrifices to those that do have special needs children.teddybear
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Feb 24, 2009 6:02 PM CST Parenting and Autism
mbcasey
mbcaseymbcaseyNorth Myrtle Beach, South Carolina USA68 Threads 7 Polls 16,449 Posts
I dated a woman with autistic children. Her boys were a real pleasure to get to know.

Her youngest who had Aspberger's Syndrome was a cute guy. He was 11 and we were trying to correct him when he would show his "ticks". He was very patient and I think before I was out of the picture was making real progress.

But I had a great time with them and I miss them.
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Feb 24, 2009 6:06 PM CST Parenting and Autism
mindfful
mindffulmindffulChicago, Illinois USA235 Threads 8 Polls 18,996 Posts
ive had contact and opportunity to know a number of people with varying degrees of autism and its offshoots

like us
each person is different and interesting
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Feb 24, 2009 6:10 PM CST Parenting and Autism
Tamarin
TamarinTamarinsomewhere, Lothian, Scotland UK173 Threads 1 Polls 3,267 Posts
lifesajoy: Some how this landed in the Virginia Forums and I wanted it here. So lets try this again.

TD's post this morning gave me this idea.

Anyone out there raising autistic kids? It's not always easy to find others in the same situation to talk to, laugh with over some of the nutty things these kids do and say or cry with on those days when you are just overwhelmed because the kids are having a bad day. Those of us raising these kids don't exactly get out much if at all depending on the extent of their kids disability. I know I can't. I was very lucky to have found my guy and if it had not been for the wild hair that flew up my butt that got me to join this site, I'd still be alone.Anyone out there who wishes to share feelings, stories or needs an answer to a question that those of us who have been dealing with this for a while might have the answer to, feel free to post or message me if not comfortable posting such things on a forum.

We have been blessed and entrusted with the care of these special little ones, but we still need others in our situation that understand the challenges and stress we face on a daily basis to lean on now and then.


I do not have an Autistic child myself but have worked with many...

We are often left in total awe at what they do and say...

I hate the label the Autistic umbrella ...who says that we are not wired up wrong and those with autisitic leanings are right...

It is a sad that we stare at those who's brains do not work in what is classed as the'norm'

These kids are just different thinking and feeling...

It is hard work doing what you do each day. Look for organisations that are supportive and groups of people in a similiar position that can support each other.
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Feb 24, 2009 6:10 PM CST Parenting and Autism
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
mbcasey: I dated a woman with autistic children. Her boys were a real pleasure to get to know.

Her youngest who had Aspberger's Syndrome was a cute guy. He was 11 and we were trying to correct him when he would show his "ticks". He was very patient and I think before I was out of the picture was making real progress.

But I had a great time with them and I miss them.


Both my boys have asperger's. They're 10 & 11. They are a real joy...most of the time. It's the occassional meltdowns (which have diminished some with age and learning to avoid things that set them off) that can be hard to deal with. But there are those times when something comes out of their mouth that you don't expect that they should be corrected for but first you have to pick yourself up off the floor from laughing hysterically. Like the time one of them asked his science teacher, out of the blue and no where near the topic they were on, why frogs didn't have balls! Thank God his teachers are a lot like me and kind find the humor in some things.
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Feb 24, 2009 6:12 PM CST Parenting and Autism
immanuelle
immanuelleimmanuelleThe Hague, South Holland Netherlands63 Threads 1,962 Posts
In response to: Some how this landed in the Virginia Forums and I wanted it here. So lets try this again.

TD's post this morning gave me this idea.

Anyone out there raising autistic kids? It's not always easy to find others in the same situation to talk to, laugh with over some of the nutty things these kids do and say or cry with on those days when you are just overwhelmed because the kids are having a bad day. Those of us raising these kids don't exactly get out much if at all depending on the extent of their kids disability. I know I can't. I was very lucky to have found my guy and if it had not been for the wild hair that flew up my butt that got me to join this site, I'd still be alone.Anyone out there who wishes to share feelings, stories or needs an answer to a question that those of us who have been dealing with this for a while might have the answer to, feel free to post or message me if not comfortable posting such things on a forum.

We have been blessed and entrusted with the care of these special little ones, but we still need others in our situation that understand the challenges and stress we face on a daily basis to lean on now and then.


Hello.

I am a teacher. I work with children on the autistic spectrum. I work at an international school in The Netherlands primarily working with children of diplomats or employees who need to work away from their home country. My kids are incredible. Would love to be a part of this support group/chat group if you will have me.

Big hugs

Imma
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Feb 24, 2009 6:15 PM CST Parenting and Autism
mbcasey
mbcaseymbcaseyNorth Myrtle Beach, South Carolina USA68 Threads 7 Polls 16,449 Posts
lifesajoy: Both my boys have asperger's. They're 10 & 11. They are a real joy...most of the time. It's the occassional meltdowns (which have diminished some with age and learning to avoid things that set them off) that can be hard to deal with. But there are those times when something comes out of their mouth that you don't expect that they should be corrected for but first you have to pick yourself up off the floor from laughing hysterically. Like the time one of them asked his science teacher, out of the blue and no where near the topic they were on, why frogs didn't have balls! Thank God his teachers are a lot like me and kind find the humor in some things.
laugh

The tantrums are sometimes hard to deal with. The boy I knew would ask questions non-stop sometimes....some of them were really funny. His memory was amazing!!! He could read something once and just about recall it verbatim. We played this card game...Yu-Gi-oh and each card had a character or trait about it...pretty complicated, but he could remember what each card did by just looking at it. There are hundreds of these cards...just amazing.
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Feb 24, 2009 6:15 PM CST Parenting and Autism
robinmarie43
robinmarie43robinmarie43Chicopee, Massachusetts USA1 Threads 111 Posts
I don't have an autistic child but my oldest daughter has severe ADHD and is likely bipolar. She is beautiful, smart, funny and loves kids and animals. It's the rest of the world she can't seem to get along with. It breaks my heart every day, and has been tough on her siblings, she has always required a great amount of attention and care.

She is 18 now but has the maturity of a 14 year old, however claims she is an adult.

It is a tough road and I hope every day I have more to give her than the day before, because some days.... there just isn't a whole lot left to give....

Love her to death.... but she is very difficult to live with ....
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Feb 24, 2009 6:17 PM CST Parenting and Autism
Jan1305
Jan1305Jan1305Sunshine and vino, Murcia Spain170 Threads 5,319 Posts
immanuelle: Hello.

I am a teacher. I work with children on the autistic spectrum. I work at an international school in The Netherlands primarily working with children of diplomats or employees who need to work away from their home country. My kids are incredible. Would love to be a part of this support group/chat group if you will have me.

Big hugs

Imma


I was just going to direct the OP to you Imma.

OP, here´s your lady!
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Feb 24, 2009 6:20 PM CST Parenting and Autism
druidess6308
druidess6308druidess6308Aliquippa, Pennsylvania USA79 Threads 13,695 Posts
I do want to add in here that autism is on the rise, and that the suspected cause is vaccinations today. All have been tested to be safe on their own, but not in combination. Children today receive many more vaccinations than we all did as youngsters. Chelation therapy to remove heavy metals and a lactose-free and gluten-free diet has been found to "cure" autism, since it removes the causative agents.

My sister led me to researching this since she keeps up with all of this as a special needs teacher.
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Feb 24, 2009 6:20 PM CST Parenting and Autism
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
immanuelle: Hello.

I am a teacher. I work with children on the autistic spectrum. I work at an international school in The Netherlands primarily working with children of diplomats or employees who need to work away from their home country. My kids are incredible. Would love to be a part of this support group/chat group if you will have me.

Big hugs

Imma


All are welcome! Those who are dealing with it and those who would just like to know about it. These kids have a lot to teach the "normal people" about patience, understanding, and acceptance of those who are different. Sometimes I think these kids are more "normal" than the "normal people". They accept everyone unconditionally and I've learned over the years that these kids are more accepting and understanding of others with any kind of disability than anyone else. They are incredable people and deserve all of our love and respect.
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Feb 24, 2009 6:20 PM CST Parenting and Autism
immanuelle
immanuelleimmanuelleThe Hague, South Holland Netherlands63 Threads 1,962 Posts
Jan1305: I was just going to direct the OP to you Imma.

OP, here´s your lady!


Geez Jan,
I just saw this thread. The symbiotic relationship between student and teacher is so incredible and so hard to say in words.
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Feb 24, 2009 6:21 PM CST Parenting and Autism
norslyman
norslymannorslymanMinneapolis, Minnesota USA21 Threads 151 Posts
I think it's terrible that the parents of autistic kids recently lost their lawsuit against the vaccine makers. Too much money and power involved. I think there is hope in Alternative Medicine to reverse many symptoms, no need to think it will be a lifelong issue. It's all about detoxing. Mainstream Medicine just wants to give them drugs.
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Feb 24, 2009 6:25 PM CST Parenting and Autism
vonney
vonneyvonneyDublin, Ireland24 Threads 6,371 Posts
My daughther is 16 and sometimes I long for the nights of her screaming and not sleeping and the morningsI had to go to work not having been to bed at all the previous night.

Crazy? Yes, but to deal with the tantrums of a 16 year old who is taller and bigger than I am thats difficult

Coping with a child who's first instinct when her siblingsannoy her is to lash out with the firstavailable object, be it a book or a knife , thats difficult

A child who hurls abusive language at you and tears the house apart as she is screaming how much she hate you ..thats difficult


A child who, when the mist passes and she sees what she has done, breaks down and cries like a baby..thats difficult
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Feb 24, 2009 6:25 PM CST Parenting and Autism
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
robinmarie43: I don't have an autistic child but my oldest daughter has severe ADHD and is likely bipolar. She is beautiful, smart, funny and loves kids and animals. It's the rest of the world she can't seem to get along with. It breaks my heart every day, and has been tough on her siblings, she has always required a great amount of attention and care.

She is 18 now but has the maturity of a 14 year old, however claims she is an adult.

It is a tough road and I hope every day I have more to give her than the day before, because some days.... there just isn't a whole lot left to give....

Love her to death.... but she is very difficult to live with ....


I understand! Both the boys have ADHD along with the autism and my 11 year old also has bipolar disorder. Take it one day at a time robin, it's all you can do. Don't forget to give yourself a break now and then and take some time for yourself. If you don't replenish yourself, you won't be of any use to her.
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Feb 24, 2009 6:27 PM CST Parenting and Autism
immanuelle
immanuelleimmanuelleThe Hague, South Holland Netherlands63 Threads 1,962 Posts
druidess6308: I do want to add in here that autism is on the rise, and that the suspected cause is vaccinations today. All have been tested to be safe on their own, but not in combination. Children today receive many more vaccinations than we all did as youngsters. Chelation therapy to remove heavy metals and a lactose-free and gluten-free diet has been found to "cure" autism, since it removes the causative agents.

My sister led me to researching this since she keeps up with all of this as a special needs teacher.


Hey Dru,
2 of my kids at school are gluten/lactose free. (As am I, by the way). It is amazing how anything ingested affects the mood and reactions to outside stimulii. I know personally what food does to me physically and emotionally. There is an emerging world of knowledge these days as there are now adult people on the autistic spectrum who are able to verbalize their feelings and views on how they perceive the world. These bits of education are invaluable.

There is sooo much to talk about, and I feel like a real heel, because I need to retire for the evening. I hope we can all chat more.
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Feb 24, 2009 6:32 PM CST Parenting and Autism
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
druidess6308: I do want to add in here that autism is on the rise, and that the suspected cause is vaccinations today. All have been tested to be safe on their own, but not in combination. Children today receive many more vaccinations than we all did as youngsters. Chelation therapy to remove heavy metals and a lactose-free and gluten-free diet has been found to "cure" autism, since it removes the causative agents.

My sister led me to researching this since she keeps up with all of this as a special needs teacher.


Yes there has been some links to vaccinations but that's not the only cause. There has also been studies that have proven a genitic link. Both my boys showed signs very early (before the suspected vaccines where administered). I've tried the gluten-free diet with no alleviation. It doesn't work in all cases and the expense is enormous. As for chelation therapy, I haven't been convinced yet that the risks out way the benefits. It's still a little too experimental for me to attempt on my boys. Maybe someday. But not yet.
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Feb 24, 2009 6:32 PM CST Parenting and Autism
robinmarie43
robinmarie43robinmarie43Chicopee, Massachusetts USA1 Threads 111 Posts
lifesajoy: I understand! Both the boys have ADHD along with the autism and my 11 year old also has bipolar disorder. Take it one day at a time robin, it's all you can do. Don't forget to give yourself a break now and then and take some time for yourself. If you don't replenish yourself, you won't be of any use to her.


I do my best to do that .... some days she's fine but most... are a nightmare. She left the house last night, said i got what I wanted and she's never coming back.... that we are allridiculous.... so it's a little raw today.but she did call to tell me she was safe and just needed to stay away for a little while.

I sometimes don't know which way to turn.... at least for tonite.. my house is quiet and nobody is yelling .... sounds selfish.. but sometimes you just need that.
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Feb 24, 2009 6:37 PM CST Parenting and Autism
vonney
vonneyvonneyDublin, Ireland24 Threads 6,371 Posts
robinmarie43: I do my best to do that .... some days she's fine but most... are a nightmare. She left the house last night, said i got what I wanted and she's never coming back.... that we are allridiculous.... so it's a little raw today.but she did call to tell me she was safe and just needed to stay away for a little while.

I sometimes don't know which way to turn.... at least for tonite.. my house is quiet and nobody is yelling .... sounds selfish.. but sometimes you just need that.



I can totally understand that. My daughter had a row with her sister over the weekend, dragged her around the garden by the hair, puched and kicked her, then stormed off to a friends. They friends Mam rang and said she could stay there the night. Was just such a relief not to have to deal with it for awhile.

Not selfish, just human.
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