Revolutionary treatment of MS on the horizon - spread the word (24)

Apr 12, 2012 6:21 PM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
We're at an age where breakthrough medical discoveries are happening all around. Even a vaccine to stop over 90% of cancers by 2020! Some discoveries are from routine research, others by accident, others still, driven by sheer desperation of a personal nature.

Such is the case with Dr Zamboni(University of Ferrara, Italy)who has essentially saved his wife (in her 30's) who had developed MS.

Early days, but as Chrissie Amphlett, that gorgeous gal from the Divynls, has already found, thousands across the globe may soon benefit. Dr Zamboni's theory flies in the face of the current medical position of MS being an auto-immune system disease. Instead, it seems that it may well be of vascular origin. It is showing to be with many who are having the procedure in places such as Mexico, and of-course through Dr Zamboni's clinical trials and others, with CCSVI.

As he began to research MS and study real sufferers, he found that in all cases, the veins in the neck are blocked. This restricts blood flow to the brain, causing a build up of cerebral iron levels and which which leads to the myelin sheath deterioration. Unblock the veins in the neck, and the matter often resolves(not always straight forward, but still..).



I have worked with young people stricken with this horrible disorder. I can't help thinking how they could have so easily been saved.sad flower

Here's to dedicated scientists all over the world, and to Dr Zamboni.
applause wine cheering handshake
Apr 13, 2012 1:01 AM CST Revolutionary treatment of MS on the horizon - spread the word
daggyone
daggyonedaggyoneWonthaggi, Victoria Australia143 Threads 14 Polls 1,963 Posts
some rat poison might have done the trick
Apr 13, 2012 3:36 AM CST Revolutionary treatment of MS on the horizon - spread the word
jem1964
jem1964jem1964Foothills of Dandenongs, Victoria Australia30 Threads 1 Polls 2,441 Posts
here's hoping the placebo trial proves the theory right. At least t might give some a future
Apr 13, 2012 5:38 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
jem1964: here's hoping the placebo trial proves the theory right. At least t might give some a future


In the people already helped to date, the objective measures are not prone to placebo, such as actual nerve function as involuntary muscle spasm, which often does not recur. But of-course, controlled experiments need to be performed before support for the theory can be found,or otherwise. Interestingly, no double blind experiment has yet to be conducted with aspirin, which to this day, is still prescribed to cardiac patients.confused

I wanted to post this in case anyone on CS knows of someone who has early onset MS, especially a young person, as it is aggressive in that age group. If it can turn someone's like around, how fabulous that would be. It still becomes dependent on the person's veins being amenable to unblocking, which is not always easily done it seems.

For anyone interested, I posted this on the Inters also.

Apr 13, 2012 5:38 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
Apr 13, 2012 5:41 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
venere08: ...I wanted to post this in case anyone on CS knows of someone who has early onset MS, especially a young person, as it is aggressive in that age group. If it can turn someone's like around, how fabulous that would be...
Apr 13, 2012 5:44 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
[quote venere08]...I wanted to post this in case anyone on CS knows of someone who has early onset MS, especially a young person, as it is aggressive in that age group. If it can turn someone's life around, how fabulous that would be...

I think I have early onset sleep tonightdoh
Apr 13, 2012 6:06 AM CST Revolutionary treatment of MS on the horizon - spread the word
jem1964
jem1964jem1964Foothills of Dandenongs, Victoria Australia30 Threads 1 Polls 2,441 Posts
but if the placebo trial proves the treatment, it is more likely to become an accepted treatment, and then maybe accessible on medicare. Meaning it would be available to a lot more people who may not have the funds to go private.

there can be nothng more heartbreaking than knowing there is a treatment that may help someone and not being able to afford the funds for it
sad flower
Apr 13, 2012 6:15 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
jem1964: but if the placebo trial proves the treatment, it is more likely to become an accepted treatment, and then maybe accessible on medicare. Meaning it would be available to a lot more people who may not have the funds to go private.

there can be nothng more heartbreaking than knowing there is a treatment that may help someone and not being able to afford the funds for it


Oh, heck yes. Yet we see it already now with the cost of some drugs for say, cancer treatment. I can't grasp how the really decent stuff remains out of reach of the ordinary person because it costs hundreds of dollars each month. So unfortunately, accepted treatment doesn't necessarily place these drugs on the PBS. It makes me so cross. At the same time, I would rather our medical service any day compared to eg that of the U.S....

It's false economy. It makes more sense for the government to spend the money and help someone recover or function better, hence reducing medical costs for keeping the person really sick.doh
Apr 13, 2012 7:01 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
Posting one of Clifford T. Ward's songs on another thread, reminds me of another and fitting for this thread. A celebration of the gift of life. RIPangel

Apr 13, 2012 7:47 AM CST Revolutionary treatment of MS on the horizon - spread the word
AgentAjax
AgentAjaxAgentAjaxBrisbane, Queensland Australia81 Threads 1 Polls 3,965 Posts
venere08: We're at an age where breakthrough medical discoveries are happening all around. Even a vaccine to stop over 90% of cancers by 2020! Some discoveries are from routine research, others by accident, others still, driven by sheer desperation of a personal nature.

Such is the case with Dr Zamboni(University of Ferrara, Italy)who has essentially saved his wife (in her 30's) who had developed MS.

Early days, but as Chrissie Amphlett, that gorgeous gal from the Divynls, has already found, thousands across the globe may soon benefit. Dr Zamboni's theory flies in the face of the current medical position of MS being an auto-immune system disease. Instead, it seems that it may well be of vascular origin. It is showing to be with many who are having the procedure in places such as Mexico, and of-course through Dr Zamboni's clinical trials and others, with CCSVI.

As he began to research MS and study real sufferers, he found that in all cases, the veins in the neck are blocked. This restricts blood flow to the brain, causing a build up of cerebral iron levels and which which leads to the myelin sheath deterioration. Unblock the veins in the neck, and the matter often resolves(not always straight forward, but still..).



I have worked with young people stricken with this horrible disorder. I can't help thinking how they could have so easily been saved.

Here's to dedicated scientists all over the world, and to Dr Zamboni.
its exciting isn’t it? Not only medicine that is rapidly progressing but all science in general. Who would have imagined only few years ago you could cross a spider with a goat, yet it has been done. Craig Venter is removing DNA and replacing it with a computerized version. What amazes me is how Incas managed to genetically engineer wild grass into corn, and here we are going as far back as far as 6000 years.
Apr 13, 2012 7:53 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
AgentAjax: its exciting isn’t it? Not only medicine that is rapidly progressing but all science in general. Who would have imagined only few years ago you could cross a spider with a goat, yet it has been done. Craig Venter is removing DNA and replacing it with a computerized version. What amazes me is how Incas managed to genetically engineer wild grass into corn, and here we are going as far back as far as 6000 years.


That explains this guy then!!....it's the mountain climbing billy goat in him.rolling on the floor laughing

Apr 13, 2012 7:58 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
AgentAjax: its exciting isn’t it? Not only medicine that is rapidly progressing but all science in general. Who would have imagined only few years ago you could cross a spider with a goat, yet it has been done. Craig Venter is removing DNA and replacing it with a computerized version. What amazes me is how Incas managed to genetically engineer wild grass into corn, and here we are going as far back as far as 6000 years.


Seriously, that's amazing stuff. Yes, I love this age, and sooooo wish I could be around for way longer than hoping, as the discoveries will be mind blowing. Some already are!
Apr 13, 2012 7:58 AM CST Revolutionary treatment of MS on the horizon - spread the word
AgentAjax
AgentAjaxAgentAjaxBrisbane, Queensland Australia81 Threads 1 Polls 3,965 Posts
venere08: That explains this guy then!!....it's the mountain climbing billy goat in him.

amazing!!!! but an idiot at the same time laugh
Apr 13, 2012 8:26 AM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
AgentAjax: amazing!!!! but an idiot at the same time


How on earth does he do it? This latest climb, was of Qatar's tallest building without a safety rope or harness!!!!!wow



He defo must have spider/goat DNA!!rolling on the floor laughing
Apr 14, 2012 3:28 AM CST Revolutionary treatment of MS on the horizon - spread the word
wash2u
wash2uwash2uMelbourne, Victoria Australia79 Threads 1 Polls 3,768 Posts
venere08: Oh, heck yes. Yet we see it already now with the cost of some drugs for say, cancer treatment. I can't grasp how the really decent stuff remains out of reach of the ordinary person because it costs hundreds of dollars each month. So unfortunately, accepted treatment doesn't necessarily place these drugs on the PBS. It makes me so cross. At the same time, I would rather our medical service any day compared to eg that of the U.S....

It's false economy. It makes more sense for the government to spend the money and help someone recover or function better, hence reducing medical costs for keeping the person really sick.


The trouble with MS is that it can be aggressive or relatively passive. Many many people using readily available drugs have been in remission for many years. Sometimes it comes back similar to before and different medication helps. Sometimes it gets worse. Many years yet before they find a way of stopping it getting worse.

A friend was diagnosed as being a potential MS person after a cat scan reveiled that it appeared that she had the classic scaring on the brain. 12 months later, most of that scaring had cleared but other minor scaring appeared indicating that she appeared to be improving but was likely to continue having the MS scaring occuring. While the body was taking care of it for now, she had the choice of taking drugs 'just in case' or rely on regular checkups.
Apr 14, 2012 6:55 AM CST Revolutionary treatment of MS on the horizon - spread the word
AgentAjax
AgentAjaxAgentAjaxBrisbane, Queensland Australia81 Threads 1 Polls 3,965 Posts
My grandfather died of MS at 56, I was only a very young child and I can still remember that it wasn’t a very pretty experience for him nor for us.
Apr 14, 2012 6:42 PM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
wash2u: The trouble with MS is that it can be aggressive or relatively passive. Many many people using readily available drugs have been in remission for many years. Sometimes it comes back similar to before and different medication helps. Sometimes it gets worse. Many years yet before they find a way of stopping it getting worse.

A friend was diagnosed as being a potential MS person after a cat scan reveiled that it appeared that she had the classic scaring on the brain. 12 months later, most of that scaring had cleared but other minor scaring appeared indicating that she appeared to be improving but was likely to continue having the MS scaring occuring. While the body was taking care of it for now, she had the choice of taking drugs 'just in case' or rely on regular checkups.


MS is particularly aggressive when it hits a young person, say in their 20's or 30's. Which is especially important that they get these clinical trials underway as it can make an enormous difference in screening for vein blockages.

Yes, of-course remissions. Yet the almost immediate cessation of MS episodes following an CCSVI intervention is not 'natural' remission as such. Here is Kerri's blog (mentioned in the initial link I posted above) where actual objective not just subjective changes are reported.



I wish your friend all the best and hopefully science can halt and even reverse her symptoms.
Apr 14, 2012 6:43 PM CST Revolutionary treatment of MS on the horizon - spread the word
venere08
venere08venere08Puglia and Autumn, South Australia Australia121 Threads 2 Polls 9,996 Posts
AgentAjax: My grandfather died of MS at 56, I was only a very young child and I can still remember that it wasn’t a very pretty experience for him nor for us.


Gee, that's so sad, AA sad flower
Apr 17, 2012 4:41 AM CST Revolutionary treatment of MS on the horizon - spread the word
wash2u
wash2uwash2uMelbourne, Victoria Australia79 Threads 1 Polls 3,768 Posts
My mum's uncle was always a sickly child (my name sake, I was always ill as a child and hence the other well known name I use). Doctors had no idea what was wrong or how to treat him. When he was 21, they finally came up with a name for it, diabetes. And then they finally worked out how to treat it a few years later. Unfortunately, he only lasted until he was 22.

100 years later, they are still looking for the pure cure. In 1998, I met, and later married, someone who had been 'cured.' She was #28 of the kidney and pancreas transplants in Australia (only after your kidneys fail and you find a suitable donor). A 'cure' but reliant on anti-immune drugs for the rest of her life and very susceptable to every illness going around. Unfortunately, she had the pokies sickness thumbs down and things did not work out to well for us.

I was diagnosed with diabetes 30 years ago and have managed to stave off the debilitating affects by some control. Diet is the best way of controlling diabetes. But I do enjoy my pizzas, pasta, pies and beers (every now and again). At least I know what I do to my body will make matters worth it and I am the one who controls my intake. I would love to be able to sit back and eat a Mars Bar but I know what the long-term affects will be.

Others, like MS, are still being studied and it may be on the horizon to find a cure or a means of arresting the affects but the horizon always seems so far away. Maybe the horizon will suddenly be there, maybe not for us to meet it. But while we have hope, there is always the chance.
Post Comment - Post a comment on this Forum Thread

Stats for this Thread

1,303 Views
23 Comments
Created: Apr 2012
Last Viewed: Apr 24
Last Commented: Apr 2012

Share this Thread

We use cookies to ensure that you have the best experience possible on our website. Read Our Privacy Policy Here