For those who.. ( Archived) (17)

Feb 24, 2009 8:31 AM CST For those who..
TurkishDelight
TurkishDelightTurkishDelightDublin, Antrim Ireland139 Threads 3,998 Posts
Moan about their lot in life, for those who complain yet they have the world at their feet..for those who complain about the little things in life...

My Friend, aged 44 is a single mother with no family other than our friendship, a mother of a boy with considertable special needs is dying.

She has been diagnosed with MND this week after months of misdiagnosis. At the begining the Docs put it down to stress, given that she is the sole carer/provider 24/7 for her lad. He needs intensivce therapy on a daily basis etc and she is the only one that provides it, as she is a proud woman and wont seek help outsaide her home. She gave up work to concentrate on him and I am the only one who she will leave him with when she needs to attend happoinments etc.

Can you imagine what is going through her head? What will happen to her son when this dreadful disease takes hold completely..its horrendous what lies ahead of her.
She rarely talks about her feelings and now that her throat is affected, she has minimal speech which is very hard for her as she now depends on help for doing some basic things in life as her shopping, its hell for her trying to ask snot nosed assistants for help.

I cant get my head around it at all, life is so bloody cruel.....
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Feb 24, 2009 8:33 AM CST For those who..
mbcasey
mbcaseymbcaseyNorth Myrtle Beach, South Carolina USA68 Threads 7 Polls 16,449 Posts
I am so sorry about your friend. She sounds like a very brave woman and is fortunate to have a friend like you.

comfort hug
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Feb 24, 2009 8:42 AM CST For those who..
TurkishDelight
TurkishDelightTurkishDelightDublin, Antrim Ireland139 Threads 3,998 Posts
mbcasey: I am so sorry about your friend. She sounds like a very brave woman and is fortunate to have a friend like you.


Hi Ken

Its rattling around my head for days since she told me, I can only imagine what its like for her. Such a horrible disease.

Yet we see or hear folks in this world who moan about their lot in life, yet if you knew her, we would be all ashamed about complaining, she just gets on with it.

She is incredible, and I am heart broken at the thought of loosing my closest friend. We cant argue any more, that I am missing already, she has to control laughing or crying as it literally chokes her, ...jesus...its hard to watch
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Feb 24, 2009 8:52 AM CST For those who..
mbcasey
mbcaseymbcaseyNorth Myrtle Beach, South Carolina USA68 Threads 7 Polls 16,449 Posts
TurkishDelight: Hi Ken

Its rattling around my head for days since she told me, I can only imagine what its like for her. Such a horrible disease.

Yet we see or hear folks in this world who moan about their lot in life, yet if you knew her, we would be all ashamed about complaining, she just gets on with it.

She is incredible, and I am heart broken at the thought of loosing my closest friend. We cant argue any more, that I am missing already, she has to control laughing or crying as it literally chokes her, ...jesus...its hard to watch


Just remember that she trusts your strength and ability to be there for her.

You are a strong person as you had to deal with your own disability. Rely upon that inner strength to get you through.

Like I said, she is blessed to have a friend like you....hug
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Feb 24, 2009 8:56 AM CST For those who..
vinny1967
vinny1967vinny1967Dublin, Cork Ireland131 Threads 7 Polls 11,475 Posts
TurkishDelight: Moan about their lot in life, for those who complain yet they have the world at their feet..for those who complain about the little things in life...

My Friend, aged 44 is a single mother with no family other than our friendship, a mother of a boy with considertable special needs is dying.

She has been diagnosed with MND this week after months of misdiagnosis. At the begining the Docs put it down to stress, given that she is the sole carer/provider 24/7 for her lad. He needs intensivce therapy on a daily basis etc and she is the only one that provides it, as she is a proud woman and wont seek help outsaide her home. She gave up work to concentrate on him and I am the only one who she will leave him with when she needs to attend happoinments etc.

Can you imagine what is going through her head? What will happen to her son when this dreadful disease takes hold completely..its horrendous what lies ahead of her.
She rarely talks about her feelings and now that her throat is affected, she has minimal speech which is very hard for her as she now depends on help for doing some basic things in life as her shopping, its hell for her trying to ask snot nosed assistants for help.

I cant get my head around it at all, life is so bloody cruel.....


sad flower

My thoughts are with you and her TD............teddybear
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Feb 24, 2009 9:00 AM CST For those who..
snugglysenior
snugglyseniorsnugglyseniorDover, New Jersey USA38 Threads 1 Polls 284 Posts
The next time I feel sorry for myself, I'm going to remember your friend and what lies ahead of her. You are her angel. She is lucky to have you for her friend as well as you to have such a strong and courageous woman in your life.

Life is cruel but you need to remember that at times it will seem that you are alone when you really aren't. People move is mysterious ways when you need them angel comfort hug bouquet
TurkishDelight: Moan about their lot in life, for those who complain yet they have the world at their feet..for those who complain about the little things in life...

My Friend, aged 44 is a single mother with no family other than our friendship, a mother of a boy with considertable special needs is dying.

She has been diagnosed with MND this week after months of misdiagnosis. At the begining the Docs put it down to stress, given that she is the sole carer/provider 24/7 for her lad. He needs intensivce therapy on a daily basis etc and she is the only one that provides it, as she is a proud woman and wont seek help outsaide her home. She gave up work to concentrate on him and I am the only one who she will leave him with when she needs to attend happoinments etc.

Can you imagine what is going through her head? What will happen to her son when this dreadful disease takes hold completely..its horrendous what lies ahead of her.
She rarely talks about her feelings and now that her throat is affected, she has minimal speech which is very hard for her as she now depends on help for doing some basic things in life as her shopping, its hell for her trying to ask snot nosed assistants for help.

I cant get my head around it at all, life is so bloody cruel.....
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Feb 24, 2009 9:06 AM CST For those who..
rubendario
rubendariorubendarioHartford, Connecticut USA8 Threads 1 Polls 3,278 Posts
Good post, I hope more people read this.

God bless!
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Feb 24, 2009 9:06 AM CST For those who..
TurkishDelight
TurkishDelightTurkishDelightDublin, Antrim Ireland139 Threads 3,998 Posts
Am I being selfish when I say I am scared...about loosing her, what liesahead in helping her, trying to sort her wee lad out.
At this moment in time mt emotions are like a roller coaster, one moment I feel stroing and ready for waht lies ahead the nect I am scatred witless.
Another thing if I am honest is that I am dreading when we get round to sortibg her childs plans for the future..I know I will be asked to take him but I cant, I am so much on my plate as it is, yet filled with such guilt...
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Feb 24, 2009 9:07 AM CST For those who..
TurkishDelight
TurkishDelightTurkishDelightDublin, Antrim Ireland139 Threads 3,998 Posts
Sorry for ther spelling errorsblushing doh
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Feb 24, 2009 9:09 AM CST For those who..
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
In response to: Moan about their lot in life, for those who complain yet they have the world at their feet..for those who complain about the little things in life...

My Friend, aged 44 is a single mother with no family other than our friendship, a mother of a boy with considertable special needs is dying.

She has been diagnosed with MND this week after months of misdiagnosis. At the begining the Docs put it down to stress, given that she is the sole carer/provider 24/7 for her lad. He needs intensivce therapy on a daily basis etc and she is the only one that provides it, as she is a proud woman and wont seek help outsaide her home. She gave up work to concentrate on him and I am the only one who she will leave him with when she needs to attend happoinments etc.

Can you imagine what is going through her head? What will happen to her son when this dreadful disease takes hold completely..its horrendous what lies ahead of her.
She rarely talks about her feelings and now that her throat is affected, she has minimal speech which is very hard for her as she now depends on help for doing some basic things in life as her shopping, its hell for her trying to ask snot nosed assistants for help.

I cant get my head around it at all, life is so bloody cruel.....


I feel for your friend and understand her fear and frustration. I to have wondered what would happen to my disabled little ones should anythng ever happen to me. It's something that can not be planned for or even comprehended. I've had several cancer scares and so far I've managed to beat it. But what about when the day comes that I can't? It's best to take each day as it comes and pray for guidance and strength. Try not to dwell on what's happening now, but on what time you still have together with her. Just being there will mean more to her than you could possibley imagine. She's lucky to have a friend like you. teddybear
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Feb 24, 2009 9:12 AM CST For those who..
mbcasey
mbcaseymbcaseyNorth Myrtle Beach, South Carolina USA68 Threads 7 Polls 16,449 Posts
TurkishDelight: Am I being selfish when I say I am scared...about loosing her, what liesahead in helping her, trying to sort her wee lad out.
At this moment in time mt emotions are like a roller coaster, one moment I feel stroing and ready for waht lies ahead the nect I am scatred witless.
Another thing if I am honest is that I am dreading when we get round to sortibg her childs plans for the future..I know I will be asked to take him but I cant, I am so much on my plate as it is, yet filled with such guilt...


What you are going through is so difficult, your reaction is normal. You have to be scared for your friend, her son and for your future also.

Maybe you could talk to a clergyman or a counselor about this. Someone who has seen this situation before and can advise you on what will happen and give you some guidance.

You are not being selfish at all...you are trying to deal with an impossible situation.
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Feb 24, 2009 9:14 AM CST For those who..
lifesajoy
lifesajoylifesajoySand Fork, West Virginia USA4 Threads 404 Posts
TurkishDelight: Am I being selfish when I say I am scared...about loosing her, what liesahead in helping her, trying to sort her wee lad out.
At this moment in time mt emotions are like a roller coaster, one moment I feel stroing and ready for waht lies ahead the nect I am scatred witless.
Another thing if I am honest is that I am dreading when we get round to sortibg her childs plans for the future..I know I will be asked to take him but I cant, I am so much on my plate as it is, yet filled with such guilt...


Do not feel guilty about not being able to care for her child. Taking on a disabled child is a challenge not meant for everyone. It would change your life forever and she will understand. Parents of diabled children understand the challenges and sacrifices necessary to care for these kids and are not offended or hurt when someone says they just can't do it. Do not beat yourself up over it. She will understand.
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Feb 24, 2009 9:18 AM CST For those who..
druidess6308
druidess6308druidess6308Aliquippa, Pennsylvania USA79 Threads 13,695 Posts
TurkishDelight: Am I being selfish when I say I am scared...about loosing her, what liesahead in helping her, trying to sort her wee lad out.
At this moment in time mt emotions are like a roller coaster, one moment I feel stroing and ready for waht lies ahead the nect I am scatred witless.
Another thing if I am honest is that I am dreading when we get round to sortibg her childs plans for the future..I know I will be asked to take him but I cant, I am so much on my plate as it is, yet filled with such guilt...


Goodness, no, TD. It's normal for you to feel these things. You are losing a dear friend, you're scared for her son and what will happen to him...it makes you loving, and normal. Don't ever feel ashamed of your feelings. hug comfort hug Scared witless shows how much you care.
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Feb 24, 2009 9:31 AM CST For those who..
TurkishDelight
TurkishDelightTurkishDelightDublin, Antrim Ireland139 Threads 3,998 Posts
To all of you...Thank you so much, your kind words are heart warming....

This I have to say is one of the times when my faith is been questioned...
I see folks who glide through life and then look at her and wonder what more will life throw at her. She lost her mum as a child, then her husband 7 years ago followed by her father 2 years ago. She then had to give up work to look after her son and now this...sorry in advance for the swear word...but F*** it!! Why her..

We met many years ago just after she lost her husband at a group for families with children like ours. She has been a voice in Northern Ireland to fight for better medical and educational provisions for our kids not to be written off. We fought many a battle with Government bodies in order to make life easier for these children and many like them...and now her voice is gone.
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Feb 24, 2009 9:40 AM CST For those who..
livinglarge
livinglargelivinglargein a good place, Kildare Ireland10 Threads 5,879 Posts
TurkishDelight: Moan about their lot in life, for those who complain yet they have the world at their feet..for those who complain about the little things in life...

My Friend, aged 44 is a single mother with no family other than our friendship, a mother of a boy with considertable special needs is dying.

She has been diagnosed with MND this week after months of misdiagnosis. At the begining the Docs put it down to stress, given that she is the sole carer/provider 24/7 for her lad. He needs intensivce therapy on a daily basis etc and she is the only one that provides it, as she is a proud woman and wont seek help outsaide her home. She gave up work to concentrate on him and I am the only one who she will leave him with when she needs to attend happoinments etc.

Can you imagine what is going through her head? What will happen to her son when this dreadful disease takes hold completely..its horrendous what lies ahead of her.
She rarely talks about her feelings and now that her throat is affected, she has minimal speech which is very hard for her as she now depends on help for doing some basic things in life as her shopping, its hell for her trying to ask snot nosed assistants for help.

I cant get my head around it at all, life is so bloody cruel.....

Words can't express how sorry for your friend I am Turkish sad flower

keep stronghug
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Feb 24, 2009 9:43 AM CST For those who..
skimpydoo
skimpydooskimpydooDublin, Ireland170 Threads 3 Polls 4,805 Posts
Sorry to hear that TD. Anything I can to help just let me know. Be strong and also be there for your friend. She will need friends like you to be with her.
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Feb 24, 2009 9:44 AM CST For those who..
livinglarge
livinglargelivinglargein a good place, Kildare Ireland10 Threads 5,879 Posts
skimpydoo: Sorry to hear that TD. Anything I can to help just let me know. Be strong and also be there for your friend. She will need friends like you to be with her.


thumbs up

hug
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