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My Friend, aged 44 is a single mother with no family other than our friendship, a mother of a boy with considertable special needs is dying.
She has been diagnosed with MND this week after months of misdiagnosis. At the begining the Docs put it down to stress, given that she is the sole carer/provider 24/7 for her lad. He needs intensivce therapy on a daily basis etc and she is the only one that provides it, as she is a proud woman and wont seek help outsaide her home. She gave up work to concentrate on him and I am the only one who she will leave him with when she needs to attend happoinments etc.
Can you imagine what is going through her head? What will happen to her son when this dreadful disease takes hold completely..its horrendous what lies ahead of her.
She rarely talks about her feelings and now that her throat is affected, she has minimal speech which is very hard for her as she now depends on help for doing some basic things in life as her shopping, its hell for her trying to ask snot nosed assistants for help.
I cant get my head around it at all, life is so bloody cruel.....