would you like to or play ignorant...... ( Archived) (66)

its part of me ...I cannot change it...as long as Im comfortable with myself..i wont say happy because Im too angry with our government, i wont be happy till I get if not an apology then I want some answers from them ty for you support its much appreciated

IVE BEEN TRYING k ..for the past 3 yrs media,government and healthboard ...they all ignored me..There is a public enquiry being held just now called trhe penrose enquiry ive been invited to have my say there so if Im weel enough to travel the distance I will be there ...

Hi bettyboop, you are very brave and open about your illness.

I know next to nothing about what you have, but I do believe most people would prefer not to know if they have an undiagnosed disease. Although this may not be sensible, it´s a normal feeling based primarily on fear.

Here in Spain the family unit is still traditionally very close. If a relative is in hospital for example, the family take it in turns to sleep over in the hospital. In many ways this is a good thing in my opinion, but my students who are mainly doctors, tell me that the seriousness or severity of an illness is not usually something that the patient can deal with, or even want to know about. Whether that is due to the tradition and culture I really don´t know. However, the family are the ones who are told the truth, they carry the burden, and make choices about how much to tell their sick family member.

What I´m trying to say, albeit in a roundabout way, is that fear of the unknown may well explain why many people, including your sister, prefer to remain blind to any possible health issues.

Hello Jan.. ..thank you for replying to me..I have a very large and also very close family..6 sisters 1 brother an my mum ,22 neices and nephews and 2 daughters 15 great neices and nephews we are i daily contact with each other through email,phone..visits etc if it werent for them and the support ive recieved from them I wouldnt be here today the change they have seen in me since my diagnoses scares them my sisters says she doesnt know if she would be strong enough to accept the major changes she would have to make in her life..