Hi as ive mentioned b4 I have hepc as the result of a blood transfusion I was given after 28 yrs its starting to affect my everday living mentally and physically..Im waiting to start treatment which I have got to be physically fit for..this week the government have decided i dont need the disability living allowance I recieve and have withdrawn my free travel which enabled me to attend hospital,doctors an support groups after their recent expense scandal im outraged at their decision as its means i may not get my treament now they made me ill why cant they help me fight it..ive tried media,lawyers and cant get help to fight my case any one any ideas?
MerriweatherAdelaide, South Australia Australia11,403 posts
bettyboop63: Hi as ive mentioned b4 I have hepc as the result of a blood transfusion I was given after 28 yrs its starting to affect my everday living mentally and physically..Im waiting to start treatment which I have got to be physically fit for..this week the government have decided i dont need the disability living allowance I recieve and have withdrawn my free travel which enabled me to attend hospital,doctors an support groups after their recent expense scandal im outraged at their decision as its means i may not get my treament now they made me ill why cant they help me fight it..ive tried media,lawyers and cant get help to fight my case any one any ideas?
Hi Betty
I cannot help you as I know nothing about what happens in your country.... but
Sending you good wishes... and best of luck in your solution
bettyboop63: Hi as ive mentioned b4 I have hepc as the result of a blood transfusion I was given after 28 yrs its starting to affect my everday living mentally and physically..Im waiting to start treatment which I have got to be physically fit for..this week the government have decided i dont need the disability living allowance I recieve and have withdrawn my free travel which enabled me to attend hospital,doctors an support groups after their recent expense scandal im outraged at their decision as its means i may not get my treament now they made me ill why cant they help me fight it..ive tried media,lawyers and cant get help to fight my case any one any ideas?
Boban1: All i can say is keep fighting, stay strong
and you have my best wishes and my prays
Thanks Boban...as far as I know im one of the "lucky" ones as most who received the "bad blood" are dead if anything does happen to me it will be on their heads an I will make sure they know it .x
bettyboop63: Hi as ive mentioned b4 I have hepc as the result of a blood transfusion I was given after 28 yrs its starting to affect my everday living mentally and physically..Im waiting to start treatment which I have got to be physically fit for..this week the government have decided i dont need the disability living allowance I recieve and have withdrawn my free travel which enabled me to attend hospital,doctors an support groups after their recent expense scandal im outraged at their decision as its means i may not get my treament now they made me ill why cant they help me fight it..ive tried media,lawyers and cant get help to fight my case any one any ideas?
If the government health care system gave you hepC, you should get a lawyer and sue them. In the States, in this type of a lawsuit, the lawyer doesn't ask for money up front, he takes 33% of the settlement after the settlement. They won't take a case unless they think they can win a settlement though.
ive tried that.an the lawyer wanted £1000 that I didnt have to spare so he dropped the case their excuse is they didnt know about hepc till 89 so couldnt prevent it..im not looking for compensation I just need them to help me fight the disease and cutting my benefits is like putting a nail on my coffin..
Hi, probably you can appeal the decision the government department made. Usually there is an appeal process if that hasn't been explained to you, write to the department. You might like to check online for contact details or from the correspondence you got, and either write a letter or email a request for information explaining your right of appeal with the decision made by the department and see what they have say. Remember squeaky door gets the oil...write to your local member explaining the likely impact of that decision and request his\her intervention. DO SOMETHING
Ziva1In the middel of nowhere.., Lapland Finland3,813 posts
sorry to hear this, I know this my be a long shot, but contact a news TV media, put it into the real Public, usually the publicy will give them a push, as they dont want bad publicty...
a good friend of mine did that, and it worked...ok it was not in your country.
I have done all that and more ive wrote to my MP..Im tired having to parade myself in front of strangers being made to feel like a scrounger I was in a highly paid career b4 my diagnoses they could show "compassion" to Megrahi why cant they show some to me...
Im in the process of appealing just now...so fingers crossed...im just so angry and tired stress accelerates my illness and this has been going on since May..im scared my kids are scared ...they dont even take into consideration your doctors input now they have new rules and regulations its someone who knows nothing about HEPc sitting judging me its their bailing out of the banks an their expenses scandal and they are making the wrong ones pay
Geez, I don't know what you can do in Scotland, but I wonder whether you can get together with other affected people, pool your money to pay a lawyer and file a lawsuit as a group?
bettyboop63: Im in the process of appealing just now...so fingers crossed...im just so angry and tired stress accelerates my illness and this has been going on since May..im scared my kids are scared ...they dont even take into consideration your doctors input now they have new rules and regulations its someone who knows nothing about HEPc sitting judging me its their bailing out of the banks an their expenses scandal and they are making the wrong ones pay
Sometimes, the first appeal doesnt work but dont be put off as the second ones usually do - I only say 'usually' too, it isnt always
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