would you tell? (47)
Better the devil you know , find out if you have the disease..If you do then find out what you can do .
my advise "face your fears , live your dreams .
Best of luck
my advise "face your fears , live your dreams .
Best of luck
scorpioaus: just wanting feedback from the forum..if you had a genetic disease in your family- with it starting to affect you once you reach your mid to late forties- if it was a debilitating disease that affects personality, behaviour and motor skills..would you feel obliged to tell a prospective partner- and at what stage of dating would you tell?
Heck, yes. And would tell as soon as it seemed he wanted to see me regularly.
Not something to withold. Otherwise it's just plain manipulative, getting your prospective partner to feel hooked, so they might not want to easily leave you. Cruel. On the other hand, there could be the ultra special person who would still want to date you
.JMO.
scorpioaus: and if you had a choice of finding out whether or not you carried the gene..would you find out? most people arent given the opportunity to find out what awaits them in old age- if you could, would you?
yeah I would want to find out.. especially if I was young and I was thinking of having kids down the track .. because there is a chance they could also have the gene yeah?
Loveiswonderful: Yep, and you are most welcome! You aint bad yourself hehe. Just hope you find the right guy as well.
you sound a lot like someone else who comes on these forums loveable
scorpioaus: just wanting feedback from the forum..if you had a genetic disease in your family- with it starting to affect you once you reach your mid to late forties- if it was a debilitating disease that affects personality, behaviour and motor skills..would you feel obliged to tell a prospective partner- and at what stage of dating would you tell?
ask yourself if you would want to know?
blondeozichick: you sound a lot like someone else who comes on these forums loveable
Hmm well I always thought of my self as a lovable person
Loveiswonderful: Hmm well I always thought of my self as a lovable person
another profile loveable
is there a reason you keep changing it? 
blondeozichick: another profile loveable is there a reason you keep changing it?
loveableone wasn't liked here lol..
online today!online today!pisceslady7Kincumber nr. Gosford, New South Wales Australia21 Threads 4 Polls 1,910 PostsIn response to: and i have take the test and have the results in an envelope with the doctors and am yet to find the courage to open it.
Hi there. I am rather concerned for you. I had a friend in a similar position. Her sister had the tests before she had her children and yes, her husband was aware of the fact that it was genetic.
However, they not only had the tests done but also had extensive counselling from a genetic counselling specialist. Having an envelope just waiting to be opened seems a dreadful space for you. May I suggest you see a specialist counsellor who has dealt with these issues before, as well as families going through the same issues? Then you will have support whether the news is good OR bad.
I think the person you need to think about is YOU for now. And no, I would not put it on a profile. I would have all the counselling I required and seek their advice.
All the best to you!
scorpioaus: just wanting feedback from the forum..if you had a genetic disease in your family- with it starting to affect you once you reach your mid to late forties- if it was a debilitating disease that affects personality, behaviour and motor skills..would you feel obliged to tell a prospective partner- and at what stage of dating would you tell?
Yes as I think they deserve the right to know once you have decided that you are actually going to enter into a relationship, by that I don't just mean dating - think you will know yourself when the time is right.
I hope all works out & goes well
I think you should tell your partner Partner because he loves that will provide you with support and assistance in order to survive and overcome the difficulties I think that the purpose of marriage is the openness and lend a hand to help the life partner
I think that once yall start seeing each other it should be put out in the open. I have a genetic disease called treacher collins syndrome that runs in my family that I just so happen to have. It doesnt affect personality or behaviour, but it could effect some of my basic skills in the future. Like I will either end up having facial reconstruction surgery or will have to talk and breathe through a hole in my throat. These are just possibilities they might never happen but I am already affected in different ways. For example I have a difficult time breathing, and sleeping because I stop breathing in my sleep. Therefore I have never had a good nights rest in my life. Although this is not the only way this affects people. Most cases dont make it past birth and there is a 50% chance that any child I have will have it too. I have always told my partner about it straight away and so far nobody has minded. I suggest putting it in the open at least for your partner. JMHO Good luck with whatever you decide. 
Wondering if you got your test results ???
were all worried now 
were all worried now 
scorpioaus: just wanting feedback from the forum..if you had a genetic disease in your family- with it starting to affect you once you reach your mid to late forties- if it was a debilitating disease that affects personality, behaviour and motor skills..would you feel obliged to tell a prospective partner- and at what stage of dating would you tell?
yes.... and right from the start
thanks so much for all your feedback and well wishes..has helped me put things in perspective- has made me realise i dont have to do this alone and am going to a group therapy session next week with other people who suffer or may suffer from huntingtons.
scorpioaus: just wanting feedback from the forum..if you had a genetic disease in your family- with it starting to affect you once you reach your mid to late forties- if it was a debilitating disease that affects personality, behaviour and motor skills..would you feel obliged to tell a prospective partner- and at what stage of dating would you tell?
You should always be up front and honest.
scorpioaus: thanks so much for all your feedback and well wishes..has helped me put things in perspective- has made me realise i dont have to do this alone and am going to a group therapy session next week with other people who suffer or may suffer from huntingtons.
You're on the right path. All the best 
scorpioaus: thanks so much for all your feedback and well wishes..has helped me put things in perspective- has made me realise i dont have to do this alone and am going to a group therapy session next week with other people who suffer or may suffer from huntingtons.
good to hear scorpioaus, self help/support groups can offer you a lot of assistance and also get you in touch with other people in the same situation with you.
Hopefully it will help you not feel so alienated and give you a few different perspectives on how different people handle this.
Good to know that you are open minded enough to find out more, so many people cut themselves off from the world because of fear.
good luckjem1964: good to hear scorpioaus, self help/support groups can offer you a lot of assistance and also get you in touch with other people in the same situation with you.
Hopefully it will help you not feel so alienated and give you a few different perspectives on how different people handle this.
Good to know that you are open minded enough to find out more, so many people cut themselves off from the world because of fear.
good luck
Hopefully it will help you not feel so alienated and give you a few different perspectives on how different people handle this.
Good to know that you are open minded enough to find out more, so many people cut themselves off from the world because of fear.
good luck
true to your name:) youre a gem thankyou..i think this first step is putting me in control as much as i can.
will let you know how it all goes and thanks again
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Yes open the results and you have a 50 - 50 chance you are ok.
If a relationship starts let your partner know one way or a nother JMO
I have a eye problem which is getting worse