In response to: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.
I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.
Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.
Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.
If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.
So, please remember me in your prayers. Especially that I will be able to get things accomplished. There's a lot to do and everything is really hard for me.
i wish you the very best of luck and health(regardless of your condition) and i also pray to ALLAH almighty to make things even easier for you.
HealthyLiving: Actually R, praying is quite simple... Almighty God, You know the situation of our friend Ray concerning the Health of his mind and body. You have given him the mind of Christ. A sound mind. I curse the roots of this disease!! I command this disease to cease and desist immediately! I ask you now to bring Rays body and mind in line with his Spirit and bring forth complete healing. The Anointing breaks the yolk! I ask you to touch Ray NOW with your presence. I ask in accordance with your word who spoke these words:
Mar 11:22 Jesus said to them, "Have faith in God! Mar 11:23 I can guarantee this truth: This is what will be done for someone who doesn't doubt but believes what he says will happen: He can say to this mountain, 'Be uprooted and thrown into the sea,' and it will be done for him. Mar 11:24 That's why I tell you to have faith that you have already received whatever you pray for, and it will be yours. Mar 11:25 Whenever you pray, forgive anything you have against anyone. Then your Father in heaven will forgive your failures."
Almighty God, I believe I receive what I have asked for and I thank YOU and give YOU Glory for Ray's healing and a good report! Ray, receive your healing in Jesus name! Amen! And so be it.
In response to: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.
I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.
Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.
Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.
If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.
So, please remember me in your prayers. Especially that I will be able to get things accomplished. There's a lot to do and everything is really hard for me.
Oh Ray, I had no idea, from a fellow soldier in GOD's army..... I will be praying for you. Always.
RayfromUSA: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.
I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.
Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.
Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.
If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.
So, please remember me in your prayers. Especially that I will be able to get things accomplished. There's a lot to do and everything is really hard for me.
Oh, Ray, I had no idea. I will keep you in my prayers. And you're a brave man, if you're facing this as well as you're stating here. Blessings.
RDM59: I don't pray Ray but you have my sympathies for having such a horid condition. I hope its progress is slow.
It started out with a bang back in 1993. From one day to the next I went from being totally healthy to pretty sick. But after the initial big bang, for years it didn't seem to change much.
But the last three years its been steadily accelerating.
I notice a marked difference from one month to the next.
It's made me a great procrastinator because I never feel like doing anything. I always hope that I'll feel better later. But I never do. So now I'm having to just buckle down and do things no matter how I feel.
druidess6308: Oh, Ray, I had no idea. I will keep you in my prayers. And you're a brave man, if you're facing this as well as you're stating here. Blessings.
Actually it surprises me. I would have thought I'd be freaked out about it all. But as it happens it just becomes a part of normal life, not nearly as awful as I would have imagined.
In Christian terms, God has given me the grace to take it pretty much in stride.
It's not "fun" to be sick but still life goes on and has its little pleasures.
It's like the old woman who only had two teeth, one upper and one lower. And she was happy about it, saying "at least they meet".
mnowsa: i wish you the very best of luck and health(regardless of your condition) and i also pray to ALLAH almighty to make things even easier for you.
RayfromUSA: Actually it surprises me. I would have thought I'd be freaked out about it all. But as it happens it just becomes a part of normal life, not nearly as awful as I would have imagined.
In Christian terms, God has given me the grace to take it pretty much in stride.
It's not "fun" to be sick but still life goes on and has its little pleasures.
It's like the old woman who only had two teeth, one upper and one lower. And she was happy about it, saying "at least they meet".
Or the one that says, "I thought I was miserable because I had no shoes, until I met a man who had no feet."
Blessings, Ray. I've known you on here for over a year, and had no clue about what you were going through. I just wish I could reach out and give you a real-life hug.
I just realized that there are a lot more posts than I thought so instead of answering each one individually just let me say thanks to you all. I'm still alive and twitching for the time being, and I'm happy to be able to talk about this while I can. For months I put it off, not wanting to spoil the party. But this is a party to me. Ciao for now.
With all those above and the below joining us. This will strengthen our prayer request to you Ray. May you continue to be brave as you are and feel comfort in your journey. Maintain contact here in CS, we will always be at your side. May God bless you.
RayfromUSA: As some of you know, I have a serious degenerative neurological condition called hydrocephalus. What that means is that liquid is accumulating in the ventricles of my brain, gradually compressing the brain more and more.
I've had it ever since 1993 but it was totally misdiagnosed until just a couple of years ago. Too late to really do anything about it.
Anyway it's been slowly but steadily getting worse for all that time and now the process is accelerating. It began to affect my balance very slightly only 3 years ago, now its so serious I can barely walk. It also affects my vision, my coordination, my leg muscles etc.
Seen from my side, It's something like living on a Tilt-o-Whirl that never stops and being sick drunk at the same time.
If it continues to get worse, (and it almost certainly will) soon I won't be able to live independently. And by that time, I won't be able to do anything at all, so I have to take all the steps now to prepare. And in my shape that isn't easy.
So, please remember me in your prayers. Especially that I will be able to get things accomplished. There's a lot to do and everything is really hard for me.
So sorry to hear that Ray ,May God Give you a good health
Report threads that break rules, are offensive, or contain fighting. Staff may not be aware of the forum abuse, and cannot do anything about it unless you tell us about it. click to report forum abuse »
If one of the comments is offensive, please report the comment instead (there is a link in each comment to report it).